So as I mentioned yesterday, part of Tilly's challenges include gross motor planning problems.
A significant way this affects her and the family is in the role-reversal between big sister and her younger siblings. Both Busby and Poppy from a very early age were manoeuvring with more confidence than Tilly. At 2 and half, Busby's skills have already passed his biggest sister's.
And as I watch Tilly's hand reach out for help from her little brother I can see the silver lining shining out of this topsy-turvy situation. Both Poppy and Busby have kind hearts well beyond their years and I wonder just how much of that is due to the support they are so used to offering big sister!
A few years ago you would have found me in a heap crying about how the sibling relationships of my children were obviously ruined! This was so wrong! And although their relationships are laced with challenge, (but which sibling relationship isn't?) I now stand firmly in the belief that Tilly's diagnosis of Smith Magenis Syndrome is the making of my kids and their relationships with each other. The outlook they have on life is breathtaking, their wide vision and acceptance of people amazing! Being the sibling of Tilly is changing their hearts in every area of life. Simply put...they are blessed!
And of course, once big sister has been dragged up onto a stage you can then enjoy the crazy spinning and dancing she offers up. That is until your 2 year old realises the strong breeze is something his sensory seeking sister will love (but that's a whole other post!)
So even though there was a time that my heart broke when I watched Poppy achieving milestones and accomplishing jobs independently that would still stop Tilly in her tracks...
I can honestly say I do not feel that way anymore! Each milestone reached by my other kids does not now feel like a slap in the face for what Tilly cannot do.
Tilly's progress possesses a magic all of it's own that more than makes up for its slow arrival!
And her little brother and sister zooming along in front have always been and remain the best encouragement and therapy Tilly will ever have ! After all she has somebody she loves to aim for...
and enjoy the view with when she finally arrives!